Panel Speakers: Langford, A., Vieria, D. and Aird, C.
For decades, certain populations have been underrepresented in biomedical research (e.g., older adults and people who self-identify as Black and/or Hispanic). The reasons for this underrepresentation in biomedical research are complex, but include lack of knowledge about research, disparities in access to high-quality, reliable, and relevant health information; limited access to high-quality clinical care, and lack of explicit invitations to participate in clinical trials. Another important fact that affects representation in biomedical research is trust in health professionals and science (or the lack thereof), particularly among minoritized groups. This panel brings together professionals with deep expertise in public health, library science, and community engagement. In our presentation, we will highlight various approaches to building and maintaining trust among diverse communities. We will also debunk common myths related to achieving diversity, equity, and inclusion in medical research. First, we will present a general conceptual model for clinical trial participation that can be applied to various disease and behavioral contexts. Second, we will introduce the ASK (Assume, Seek, Know) approach for enhancing participation in biomedical research: (1) assume that all patients will want to know their options, (2) seek the counsel of stakeholders, and (3) know your numbers. Third, we will provide real-world examples of successful community and stakeholder engagement. Finally and most importantly, a medical librarian and community health educator will share lessons learned from advising and collaborating on biomedical research projects conducted with racially/ethnically- and age diverse populations.
After this presentation, participants will be able to:
1. Define the difference between trust, mistrust, and distrust
2. Explain 1 strategy for working collaboratively with your target population
3. Describe the benefits of having librarians and health educators on research teams
4. Communicate 1 approach for improving health literacy and access to health information